“If this had happened to me or to Rory’s dad, Rory would have been saying, ‘Mom, Dad, we have to do something.’ We can’t bring Rory back, but it has become a mission for us to have people in our community and all over the U.S. … be able to recognize the signs and symptoms of sepsis, so they can advocate for their own care with doctors and healthcare professionals,” said Orlaith Staunton, who lost her son, Rory, to sepsis in 2012.
“I want children to be able to express themselves in a way that they really aren’t able to in the hospital. If they wear the same gown as everybody else, they get treated like everybody else. They’re not just Room 74, as in ‘Room 74 has cancer.’ They’re a little kid who loves Avengers and has a name,” said Jessica Kidd.
“Caregivers are an underserved population. It’s a silent population. People don’t realize how stressful it is,” said Marian Hamilton. “The life you had before doesn’t exist while you’re going through it. There needs to be a paradigm shift in the way hospitals view the family caregiver and how caregivers view themselves in getting more help.
“The last time we had lunch with Leslie, she said to us as she departed, ‘Give me a big hug and a kiss. This may be the last time you see me.’ She drove away, waving, as we stood in sorrow. Soon afterwards, she entered into hospice care,” said Sandra Gunn. Listening to Gunn share the poignant story of seeing her friend, Leslie Twohig, for the last time makes you realize that the loss is still painful.